Autism & I/DD

Intellectual and developmental disabilities (I/DD) are a physical and/or cognitive impairments that occur before the age of 22. Autism spectrum disorder is generally considered a type of developmental disability that affects behaviour and communication. The autism and I/DD market provides supports and health care services to these populations. Over the past decade, there has been an increase in the changes and challenges affecting I/DD and autism markets—the move to managed care and value-based care, the shift away from residential treatment, the increasing emphasis on consumer-directed care, and new workforce challenges.

Latest Resources

• More Diagnoses, New Demands: Best Of The 2025 OPEN MINDS Autism & I/DD Executive Summit
• Texana Center Shutting Down Its 14 Houston-Area I/DD Group Homes
• Michigan Medicaid Survey Finds Dissatisfaction With Breadth Of Care Options For Behavioral Health  
• Career Enhancement Gains Strength As Employment Retention Tool for I/DD Direct Support Professionals 
• California Medicaid Public Notice for Proposed SPA 25-0026–Intermediate Care Facilities For The Developmentally Disabled – Continuous Nursing (ICF/DD-CN): Transition Of Benefit/Setting
• Allegations Of Abuse, Neglect & Exploitation Rising For Maine Adults With I/DD Receiving HCBS
• Open Doors For Multicultural Families Secures $12 Million In State Funding For The Kent Multicultural Village To Support I/DD Families
• Uncovering The Challenges & Opportunities For Reimbursement: A Payer Panel
• Measuring Outcomes In Whole Person Care
• The Monarch Whole Person Care Model: A Lunch & Learn Session–Sponsored By Monarch
• Addressing Health-Related Social Needs In Your Service Delivery: Strategies & Solutions
• Evolving Best Practice Models In Whole Person Care For People With Cognitive Disabilities: A Panel Discussion
• Alongside Acquires San Diego ABA
• Northeast Arc To Offer Telehealth Services In Residential Homes
• Oklahoma Reduces Developmental Disabilities Services Wait Time From 13 Years Down To One Year

See All

About 42% Of Children With Neurodevelopmental Disorders Have Rare Genetic Conditions

Genetic testing for a group of 246 children with neurodevelopmental disorders (NDDs) such as autism, developmental delay, and other neurodevelopmental disorders revealed that 41.8% had rare genetic mutations that would benefit from changes in clinical management. The genetic testing focused on identifying genetic mutations (also called pathogenic variants) that increase the risk of developing a disease or disorder. Within this group, there were 62 different genetic diagnoses. The majority, 50 diagnoses, were found in just… Read

• Nebraska Reduces I/DD Waiting List By 75%, From 2,700 In 2024 To 700 In 2025
• Nebraska DDD Home & Community-Based Services Waiver Transformation: ‘Access For All’
• Nebraska Division of Developmental Disabilities Fiscal Year 2024 Annual Report For July 1, 2023–June 30, 2024
• Delaware Issues RFP To Continue Building Its HCBS Capacity For Individuals With Intellectual/Developmental Disabilities
• Delaware Division Of Developmental Disabilities Services Application For 1915(c) HCBS Waiver, Approved July 1, 2024

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