Autism & I/DD

Intellectual and developmental disabilities (I/DD) are a physical and/or cognitive impairments that occur before the age of 22. Autism spectrum disorder is generally considered a type of developmental disability that affects behaviour and communication. The autism and I/DD market provides supports and health care services to these populations. Over the past decade, there has been an increase in the changes and challenges affecting I/DD and autism markets—the move to managed care and value-based care, the shift away from residential treatment, the increasing emphasis on consumer-directed care, and new workforce challenges.

Latest Resources

• Caravel Autism Health Opens Location In South County, Missouri 
• Kalamazoo, Michigan Sheriff’s Office Launches Autism Awareness Program 
• Tech ROI – More Than Numbers
• Pennsylvania Programs For Individuals With I/DD Have Hidden Waiting Lists 
• Texana Center To End Participation In Texas HCBS Medicaid Waiver Programs For People With I/DD 
• Maine To Eliminate Planned Use Of Restraints For Adults With Developmental Disabilities 
• Court Orders Texas To Stop Segregating People With I/DD In Nursing Facilities 
• Steward v. Young Second Amended Complaint
• Ruling In The Case Of Steward v. Young
• Maine Legislative Document 769: An Act Regarding Access To Behavioral Health Supports For Adults With Certain Disabilities
• More Diagnoses, New Demands: Best Of The 2025 OPEN MINDS Autism & I/DD Executive Summit
• Texana Center Shutting Down Its 14 Houston-Area I/DD Group Homes
• Michigan Medicaid Survey Finds Dissatisfaction With Breadth Of Care Options For Behavioral Health 
• Career Enhancement Gains Strength As Employment Retention Tool for I/DD Direct Support Professionals 
• California Medicaid Public Notice for Proposed SPA 25-0026–Intermediate Care Facilities For The Developmentally Disabled – Continuous Nursing (ICF/DD-CN): Transition Of Benefit/Setting

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About 42% Of Children With Neurodevelopmental Disorders Have Rare Genetic Conditions

Genetic testing for a group of 246 children with neurodevelopmental disorders (NDDs) such as autism, developmental delay, and other neurodevelopmental disorders revealed that 41.8% had rare genetic mutations that would benefit from changes in clinical management. The genetic testing focused on identifying genetic mutations (also called pathogenic variants) that increase the risk of developing a disease or disorder. Within this group, there were 62 different genetic diagnoses. The majority, 50 diagnoses, were found in just… Read

• Allegations Of Abuse, Neglect & Exploitation Rising For Maine Adults With I/DD Receiving HCBS
• Open Doors For Multicultural Families Secures $12 Million In State Funding For The Kent Multicultural Village To Support I/DD Families
• Uncovering The Challenges & Opportunities For Reimbursement: A Payer Panel
• Measuring Outcomes In Whole Person Care
• The Monarch Whole Person Care Model: A Lunch & Learn Session–Sponsored By Monarch

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