Researchers at University of Illinois Chicago (UIC) have been awarded $7 million from the Patient-Centered Outcomes Research Institute (PCORI) to assess whether integrated behavioral health care coordination, which includes a tailored mental health treatment component, achieves better outcomes than a standard state agency care coordination program.
While the study is not yet open for enrollment, the researchers plan to engage 780 teens ages 13 through 20 who have intellectual and developmental disabilities (I/DD) and their families, and will follow their health and experiences within the health care system for 24 months. Recruitment will include teens living in urban and rural areas and will be inclusive of all racial and ethnic identities. Pending approval of the study by the UIC Institutional Review Board, the researchers plan to enroll participants beginning in the fall of 2022.
While all participants will receive standard care coordination from the state agency, half of the participants will also receive the CHECK behavioral health component. Throughout the five-year study, the researchers will track how teens feel and their health behaviors by asking questions about anxiety and depression, health, health habits, functioning, ability to manage health care, and self-efficacy. The team also will track how satisfied teens, parents and health care provider organizations are with the care coordination experience.
The CHECK program was designed to help Medicaid-covered families and children with chronic health conditions achieve better long-term control of health. It places community health workers alongside health care providers to better serve the whole person by addressing social determinants of health.
PCORI is an independent non-profit organization authorized by Congress in 2010 to fund research that will provide health care consumers, their caregivers, and primary care professionals with the evidence-based information needed to make better-informed health care decisions. Funding for the study, called Behavioral Health Stratified Treatment (BEST) to Optimize Transition to Adulthood for Youth with I/DD, is pending completion of a business and programmatic review by PCORI staff and issuance of a formal award contract.
This was reported by University of Illinois Chicago on September 30, 2021.
Contact information: Jacqueline Carey, Director of Health Sciences and Research Communications, Office of Public Affairs, University of Illinois Chicago, 601 South Morgan, MC288, Chicago, Illinois 60607; 312-996-8277; Email: firstname.lastname@example.org; Website: https://smc.uic.edu/
Contact information: Patient-Centered Outcomes Research Institute, 1828 L Street Northwest, Suite 900, Washington, District of Columbia 20036; 202- 827-7700; Fax: 202-355-9558; Email: email@example.com; Website: https://www.pcori.org/