Sixteen states and the District of Columbia (D.C.) are working to connect systems and families to support care for aging individuals with developmental disabilities and their family caregivers, according to a recent report. The five-year Bridging Aging and Disability Community of Practice was launched in 2021 by the federal Administration for Community Living (ACL).

Planning for the future of individuals with I/DD and their families includes making arrangements for when a primary family caregiver becomes unable to provide support. An estimated 35% of adults with I/DD reside with family caregivers who are between the ages of . . .

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Autism & I/DD

Intellectual and developmental disabilities (I/DD) are a physical and/or cognitive impairments that occur before the age of 22. Autism spectrum disorder is generally considered a type of developmental disability that affects behaviour and communication. The autism and I/DD market provides supports and health care services to these populations. Over the past decade, there has been an increase in the changes and challenges affecting I/DD and autism markets—the move to managed care and value-based care, the shift away from residential treatment, the increasing emphasis on consumer-directed care, and new workforce challenges.


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The Modified Checklist for Autism in Toddlers (M-CHAT), a widely used screening tool for early detection of autism spectrum disorder (ASD) in children ages 16 to 30 months, missed 38% of high-risk toddlers who were later diagnosed with ASD, according to a study of Swedish national health data. The study analyzed 2,178 high-risk children born between 2013 and 2019 who were screened with the M-CHAT at approximately age 2 and followed through age 9 for… Read